Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Love her!! We miss you guys!! Ellie doesn't look overly impressed with her splints in that last photo!! I have a photo of Ryley with a very similar look on his face when he has splints on!Need to organise a catch up xox
I LOVE the photos...especially the one of her lounging all "movie-star-like" on her chair! xo
ReplyDeleteLove you Ellie and all the pics! So cute!
ReplyDeleteEllie is so stinkin' cute! Love the photos!!!
ReplyDeleteLove her!! We miss you guys!! Ellie doesn't look overly impressed with her splints in that last photo!! I have a photo of Ryley with a very similar look on his face when he has splints on!Need to organise a catch up xox
ReplyDeleteOMG SOOOOOOOOOOOOOOOOOOOOO cute (:
ReplyDeleteshe is getting so big.
Nic
Great photos, she sure is getting big!
ReplyDelete