Being happy doesnt mean that everything is perfect.

It means that you have decided to look beyond the imperfections...

Monday, April 30, 2012

Reflections. How far we have come..!!

Recently I have been sorting through Ellies things, moving furniture, buying baby things... all to get ready for our new addition which is due in 8 weeks.. A few days ago I was taking Ellies clothes out of her draws, as these were going to go in the baby's room. Going through her socks I came across a tiny box, which had Ellies first socks that she wore and her hospital bracelet from when she was born.

These 2 items gave me a real reality check on how far we have come, or should I say, Ellie has come from when she was born. The socks were actually Baby Bjorn doll socks and her hospital bracelet was not much bigger than a 5 cent coin.

It made me think back to that day over 3 years ago, when when Ellie was born. Nothing could have prepared us for that day. We had a baby born at 1.8kgs (under 4lbs) who was to small for 000000 clothes,  premmie nappies went half way up her back, and we were also shocked to find out that she was also born with one eye. If I look back at photos I remember that time clearly, but there is also allot that I don't remember due to the shock of the situation....

However fast forward 3 years, and we now have a beautiful, cheeky, funny little girl.. Who wears size 1 clothes, is moving around on her bottom, is very switched on, loves life... and continues to amaze us.

How far we have come...!!
And how much we have learnt... Not only about Ellie but also about ourselves.

(The sock on the right is Ellies current sock size..!!)

From this...

To This...!!! 

Tuesday, April 17, 2012

Amazons response to my complaint

If you read my previous blog update you would be aware that I emailed a complaint to regarding a book with an offensive title for sale on their online store

I did ask for a response. Read this below. Now.. I did expect that I would get a generic response. However I did not expect to get a generic response that didn't even answer my enquiry or acknowledge my complaint.. I don't know what has infuriated me more... the book that is for sale, or the lack of proactivness to my complaint... I feel a reply email coming on.

Watch this space..!!



The items you referenced are not available for sale. Thank you for contacting us.

Thank you for your inquiry. Did I solve your problem?

If yes, please click here:

If no, please click here:

Jagadish S

Monday, April 16, 2012


This afternoon, a friend of a child with a disability put something on FB that caught my eye. It was from a very, supposedly, reputable online store.

They were selling a book titled: Duh... - 101 Reasons You Might Be a Retard


Needless to say I have sent them a complaint email... have a read of my email below.

Appalled, shocked, outraged, offended.... this doesn't even begin to describe what I felt when I saw a book for sale on your website, called: Duh... - 101 Reasons You Might Be a Retard

I am the mother of a 3.5 year old disabled girl. She has physical and intellectual disability's. For someone to say that my daughter is disabled, is not offensive. This is true, this is a fact. For someone to call her a retard or retarded is unbelievably offensive.

On your website in the book description it states, the following:

Is it genetic or influenced by environment? The answer really doesn't matter, but what does matter is being able to identify a retard.

WTF?? Are you serious? This book is making an absolute mockery and joke of people with disabilities and those who care for them. To use such a word and to create and actually sell a book with this title in this day and age is truly offensive. People with disability's are human. They deserve respect, and dignity as do all humans.

This book needs to be removed from your site, and needs a world wide ban on it. The author, well... lets just say, what I would like to say about him, probably shouldn't be printed... but I'm sure you get my drift.

One last word, I noticed that the book is only for sale for $0.99c. Is that desperate for a F***ing $$$ That they need to resort to selling such obscene, offensive crap.

I would love to see a reply to my complaint...

From one very outraged mother of an absolutely beautiful disabled girl

(Watch this space)

Sunday, April 1, 2012

Eye surgery update

Its been just over 1 week since Ellie's eye surgery, where she had a Hydrophilic orbital implant inserted into her right eye socket. The surgery went well. We were in at the hospital at 7am and back home by lunch time. Ellie woke up pretty upset and agitated from the anaesthetic. This is something that is happening more with anaesthetics as she gets older.

I spoke to her eye surgeon about putting Ellie on antibiotics for the next 4 weeks whilst the expander is in, as last time Ellie had this procedure, her eye socket got so badly infected. He wasn't keen on putting her on AB's for such a long time. So the plan was to review Ellie 1 week after surgery to see how she was going, and then talk about putting her on AB's for the last of the 4 weeks.

We saw her surgeon last Wednesday and I had concerns over how red, inflamed and basically angry her eye looked. He agreed, so Ellie was put on AB's straight away to stop any infection or stop it getting worse. We go back to see him this week, to see if there is any improvement.

I have to admit I was shocked at the size of the implant. It is definitely allot bigger than last time, and its still going to expand over the next 3 weeks, until it is taken out.