She continues to amaze us...

Clever Girl

Lately Ellie has been understanding so much more of what we say and do... For example when we get her breakfast, lunch or dinner ready, in the microwave, she knows that it is her food and sits very excitedly in the kitchen.. we will then call her over to her seat and table and she scoots on over..

Ellie has also been able to clap for some time, which is an achievement that we were very happy with, but now Ellie has started to do it on command, as she does with wave hands and kick legs...

This just shows that she is definitely understanding what we say to her... Clever little girl

Check out the video below.

Neuro Update

A few weeks ago, Ellie had a routine hip x-ray. The hip x-ray results came back fine. But they also managed to get the bottom part of her spine in the x-ray and this showed up some abnormalities. Ellie's neurologist, like Luke and I have always assumed that Ellie's not walking yet was due to her having WHS, low muscle tone, delayed development etc...However thought it would be a good idea to look into the abnormalities further. He organised an MRI to get a better look at her spine, and also referred us onto a neurosurgeon to discuss the results.

We met with the neuro surgeon today. Basically my understanding is that Ellie's spinal cord is a little bit longer than it should be and it is also slightly tight... Could this be a factor behind why Ellie is not walking yet?? Could surgery to loosen up her spinal cord assist??? Or is Ellie not walking yet, due to the bigger picture of WHS and its symptoms??

Who knows?? As the neurosurgeon said.. if we had a crystal ball...!!!!

He explained that the issue with Ellie's spine is quite mild. He isn't even sure that if we did do surgery to loosen up her spine that it would be a factor in her walking... Due to this and also not wanting to overload Ellie with surgery's (considering she has 2 eye surgery's in the next 5 weeks) we have decided to take the conservative approach.

The neurosurgeon is going to review Ellie in 6 months, to see where she is at... A real positive is that Ellie wants to stand, Ellie wants to walk, and with assistance really gives it a try... The only reason we Will try the surgery to see if it helps is if in 6 months time, Ellie has regressed or she hasn't improved at all..

But looking back on Ellie's progress in many areas of her development over the last 6-8 months, I am not too concerned... This little girl just keeps on making gains..!!