Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Great pics!! That standing frame is the same as the one Ryley had pretty much. He had a monkey one though!! Can't wait to see her tomorrow!! I will remember my camera this time!!
what can i say ellie just gets more beautiful everyday and what can i say about the parents they are just wonderful and amazing they realy love their georgeous girl from a very proud mum mother in law and oma love you all very much
Ellie is doing amazing!! Love the pictures, she is such a beautiful little girl.
ReplyDeleteADORABLE!!! She looks like she is doing great!
ReplyDeleteCute, cute, cute pictures! I love the stick up hair. My kids had "chick hair" too.
ReplyDeletelove, love, love her!
ReplyDeleteEvery time I see her pictures, I can't get over how gorgeous she is!
ReplyDeleteAHH! I love her Fluffy hair and that cute hat! She is such a beautiful girl with such a special sparkle about her!
ReplyDeleteGreat pics!! That standing frame is the same as the one Ryley had pretty much. He had a monkey one though!!
ReplyDeleteCan't wait to see her tomorrow!! I will remember my camera this time!!
Love the latest photos.
ReplyDeleteShe is beautiful!
ReplyDeletewhat can i say ellie just gets more beautiful everyday and what can i say about the parents they are just wonderful and amazing they realy love their georgeous girl from a very proud mum mother in law and oma love you all very much
ReplyDelete