Another problem at the moment is that Ellie is doing 'strange' things, I know this sounds very broad, but it is. She does a clicking thing with her mouth, some funny 'o' shape with her mouth, and head and lip trembling. When she is doing these, it is quite repetitive. We dont know if it is seizure activity or seizure related. I spoke to Ellies neuro a few days ago, and he said before we put up her meds, he would rather do another EEG and see if we can catch Ellie doing these 'strange' things. This hopefully gives us a clearer picture of what is going on. My thoughts are that there is some sort of seizure activity going as when she has been doing the lip and head trembling, she has been quite vague... a sign of seizures with Ellie. Hopefully the EEG happens this week
Aside from this we are all good, and Ellie suprisingly still has her sense of happiness and humour, even though she is feeling a bit ordinary...
LOVE this girl to bits!!!
I hope that Ellie gets better soon. Hugs and kisses. :)
ReplyDeletePoor Ellie. I hope she is better soon. Winter seems to be such a bad time for our kids. Hope the EEG can happen this week. Sounds a bit like seizures, though I hope it isn't! xx
ReplyDeleteHope she is feeling better soon xx
ReplyDeleteAw, hope she gets feeling better and that you can get some answers... thinking of you!
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