Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Thursday, December 30, 2010
Camera crazy!!!
Sorry for the overload, but we have taken heaps of pics lately. Mostly from our week away with Lukes family, and some of meeting another WHS beauty, Caitlin
Absolutely gorgeous photos!! So glad you got to meet Caity. They were the first family I ever met and they continue to inspire me! Ellie looks so happy! In fact, all of you do! Have a great New Year and we will see you lots next year don't worry!!!! xxxx
Great Pictures. LOVE the pink polka dot swimsuit!!! Ellie is absolutely adorable!
ReplyDeleteLove, love, LOVE the photos! Look at her standing! And the bathing suit? Too cute for words! Keep them photos coming!! xo
ReplyDeleteEllie is so beautiful and looks great! She's getting stronger everyday...
ReplyDeleteLovely Photos x
ReplyDeleteAbsolutely gorgeous photos!! So glad you got to meet Caity. They were the first family I ever met and they continue to inspire me! Ellie looks so happy! In fact, all of you do! Have a great New Year and we will see you lots next year don't worry!!!! xxxx
ReplyDelete