Ellie has certainly kept us on our toes while she has been in hospital since Tuesday lunch time. From the time we got here, to 5am the next morning she was having seizures on and off that lasted between 4 & 20 minutes. The 20 minute one didnt stop by it self, they had to give her some midazolam to stop this. So the poor thing didnt get much sleep that night, and needless to say neither did I. Wednesday was a better day with only 2 moments where she seemed to go a bit vague and stare at nothing for 1 - 2 muinutes.
Last night they started her on a new medication clonazepam, this she will be only on for about a week as a bandaid to prevent any seizures whilst they increase her tegretol. Last night this medication made Ellie behave quite weird, at first it made her go off with the fairys, the poor thing looked like she was out of it for about 30 minutes, so I thought... Great!! She will sleep well tonight. Not the case, after appearing off with the fairys for 30 minutes, the meds made her hypo, she did not stop moving, and talking, or should i say loud grunting from 9pm - 1am, after which she was so tired she just passed out.... YAY, which meant I got a good nights sleep.
She has had the same medication this morning and it has just made he sleep so hopefully this hypo episode was just a one off. The good news is that we get to go home today, we are just waiting on the epilepsy nurse to come and show us how to administer midazolam, this is to be used at home if Ellie has another seizure that lasts over 5 minutes.
At this stage they are still comfortable for her MRI to go ahead on the 17 November, so it will be good to finally get this out of the way.
Ellie is fast asleep at the moment, so I am going to pack up our hospital bags to get ready to go home.. YAY!!!
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