Its been a few weeks since my last post, but I have been living with my parents while Luke has been renovating our house. (and will be there for another few weeks)
Tonight we are staying in an appartment near the Royal Childrens Hospital as Ellie has to be there at 7am tomorrow morning.
This operation is a long time coming. Tomorrow she is having a expander put into her right eye socket (this is the one that we had to get from Germany) this expander will get bigger over time as the fluid from her eye socket moistens the expander. The idea of this surgery is to make her eye socket big enough to fit her first prosthetic eye, as there is not enough room at the moment. We think the expander stays in for about 4 weeks, but we will find out more tomorrow morning. It also depends on how well her body responds to the expander. I am quite relieved to get this surgery out of the way, as it was delayed due to some problems we had getting the expander imported from Germany..... But our eye surgeon, worked wonders, and managed to get it approved... YAY!!
The surgery will only be a day procedure, but Ellie can sometimes not eat after surgery, so that would be the only reason we will be in hospital for over a day....
Hopefully I will be able to provide a update tomorrow on how the surgery has gone, and how Ellie is recovering.
Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
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