Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Friday, October 23, 2009
No blog updates: 24 October - 7 November
Just letting you know that there wont be any blog updates from the 24 October - 7 November, as Mel is moving to her parents while some renovations are being done.
THis is great information, Thank you!! & Thank you for following Ellies blog.
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