Another set back... when it rains it pours

As I had mentioned in a previous post, Ellie was scheduled for her MRI on Tuesday 19 October. We were looking foward to getting this out of the way, as it was 1 month since her first seizure, and just wanted to rull out any other possible causes for her seizure, other than WHS.

The night before Ellie was due to go in for the MRI at about 9:45pm I checked on her in her room as she had been unsettled all night, and just wouldnt sleep. When I went in I realised she had vomitted on herself, so I picked her up out of her cot, she was completely floppy, she had no muscle tone whatsoever. I thought 'this is not good'

We lied Ellie on the couch and she proceeded to have a seizure, this time not as big as the first (thank goodness) it lasted for about 8 minutes. By the time the paramedics arrived, her seizure had stopped. However they checked her temp and it was 38.8, this could have been partially the cause of the seizure.

At the ED at Monash they monitored her, and they were about to send us home at 1:30am, whilst the doctor was writting our discharge letter, Ellie changed, she was very unsettled and became quite hot again, whilst she didnt have a temp, her face was extremelly red. When the doctor came back, they thought it be a good idea if we stayed till the morning, as Ellie had her MRI booked at 8:30am anyway, and this way they could monitor her until then. By this stage I was really trying to get Ellie to sleep as she only had about 1 hour under her belt, but she was just getting more and more unsettled..... clock ticked over till 4am and she still wouldnt go to sleep, at this point she started to shiver, so the doctor and I watched her for about 5 minutes, she was alert, but just didnt seem right. Our thoughts were right, after a large vomit, Ellie started to have another seizure. At this point they gave her Diazepam, to stop the seizure. All I can say is thank goodness we didnt go home at 1:30am.

After all this the anaesthetist, decided it wasnt a good idea to do the MRI (as they had to do this under a general anaesthetic) even though more than likely Ellie would be ok, she had been through too much to risk it. SO the MRI is now booked for the 17 November.

The neurologist has up'd her medication, to help with preventing seizures, again this will make her tired, drowsy, etc but hopefully her body adjusts to it.

We are home now, which is always nice. Nothing beats your own bed, your own shower, and a hot home cooked meal. Below are some photos of Ellie in hospital.