Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Wednesday, January 20, 2010
Not many words needed today
Today for breakfast Ellie ate 1 WHOLE weetbix with milk and a whole heap of custard..... Not much more is needed to be said except for....... WOO HOO!!!
my baby mawaddah is doing poorly! she now warded in children intensive care unit, leicester royal infirmary. posible of having brain infection... pray for us please!
Yay!! Awesome Ellie!!
ReplyDeletemel,
ReplyDeletemy baby mawaddah is doing poorly! she now warded in children intensive care unit, leicester royal infirmary. posible of having brain infection... pray for us please!
My thoughts are with you Min, please keep me updated...
ReplyDeleteYAH!!!!!!!!!
ReplyDelete