EEG Update

Ellie had a EEG a few weeks ago. This week we had an appointment with her neurologist, Michael. It had been 3 months since we had seen him.

So we gave him a bit of a update... that Ellie had only had 3 or 4 small noticeable seizures in the last 3 months... Which is GREAT!!!

However there has been many occasions, (at least every 2-3 days) where she does 'things'. The reason we call them things is, I dont really know how to describe them. She might twitch her nose, lips, or eyes. She might drool and stare at something. She might wake up looking like she has been hit by a bus and not slept etc etc... However when these things happen, it is short, it doesnt go for long, and she is aware the whole time. So she isnt vagueing out, which makes us really unsure if it is seizure activity or not.

He told us that her EEG still came up with some activity and abnormalities...

So... The plan is to increase Ellies dose of kepra, as this is the one that seems to have really brought Ellies seizures under more control and still keep her on Trilpetil. If in 2 weeks time we are still noticing these strange 'things' then we can increase her Kepra again.

All this aside we are very happy with where Ellie is at the moment with her seizures, considering how bad they were at the end of last year & early this year... Very happy with Ellies neurologist!