Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Those are great photos! I love Ellie's hair. Caleb and Gracie both had the stick up hair. Caleb's was straight up but Gracie's had the little wave in it like Ellie. I miss their stick up hair!!
Ha ha ha about the hair.. Yep!! I love ellies hair, its wild and crazy!!! Jolene - Ellie is doing really well in the frame, she can do up to 20 minutes in it which is her 'personal best' she plays with her toys so much while in it, she studies them. THis week I am aiming to get her to do 30 minutes in it
She looks great in the stander!! Ryley only ever tolerated about 10 minutes in his at a time. So 20 minutes if fantastic!! Can't wait to see her this week xox
Love the photos, beautiful girl!
ReplyDeleteThose are great photos! I love Ellie's hair. Caleb and Gracie both had the stick up hair. Caleb's was straight up but Gracie's had the little wave in it like Ellie. I miss their stick up hair!!
ReplyDeleteShe's gorgeous and looks very confident... go Ellie!
ReplyDeleteOh what sweet pictures! How fun to see her standing!
ReplyDeleteShe looks like she's enjoying it, how is she doing with it?
ReplyDeleteHa ha ha about the hair.. Yep!! I love ellies hair, its wild and crazy!!!
ReplyDeleteJolene - Ellie is doing really well in the frame, she can do up to 20 minutes in it which is her 'personal best' she plays with her toys so much while in it, she studies them. THis week I am aiming to get her to do 30 minutes in it
She looks great in the stander!! Ryley only ever tolerated about 10 minutes in his at a time. So 20 minutes if fantastic!! Can't wait to see her this week xox
ReplyDelete