Very excited about our first WHS conference...!!!

Every 2 years the Australian Wolf Hirschhorn support group hold a conference, for parents, kiddies and family members with WHS. The conference last year was held only 3 months after we had received Ellies diagnosis of WHS. Last year part of me wanted to go, but there was a massive part of me that was scared to go. I think because Ellies diagnosis was still fresh, we still were taking it all in, and learning about Ellies condition. I think if we went last year, it would have been too much, I think it was better that we dealt with the diagnosis within ourselves first before we started meeting other families.

The dates for the next conference have been announced and it will be held in Ballarat from the 11-14 November 2011. Luke and I are very much looking forward to this. We have already met 2 families of kiddies with WHS, and we are looking forward to meeting so many more.

Anna and David who have Ryley also with WHS, are orgnaising/hosting next years conference in Ballarat and have organised Dr John Carey (USA) who is one of the world experts in WHS, and he has spent the last 4o years researching the condition. He recently spoke at the National USA WHS conference and 2 years ago at the UK conference.

Very Very excited about the conference!!

Click here to read more about the Australian conference.