My dream is on the way to becoming a 'REALITY'

I have posted many times about my dream of wanting to start a not for profit group to raise funds to support WHS kiddies and their familys, and also to raise money to go towards research into WHS.

I have been working with a family member, (thanks Johno) to acheive this. Let me say it has not been easy. We have been totally confused by the whole process of how to set a charity up. However..... Thursday this week, there was light at the end of the tunnel.

We were put in contact with a man, who over the last 20 years has set up 50 or so charities. He has offered to help us every step of the way, till we have it set up.

What you need to know though, this is not his job. Nor does he get paid for this work, to help set up charities. He does this purely because, in his words; "He likes to help people"

WOW!! We were blown away by this man. By his generosity. By his wealth of knowledge. By his willingness to help us, Every step of the way.

So... with saying that.... where are we up to in the process?

We have completed our Application to become a Incorporated Association & we have our statement of purpose, and rules (constitution) that will allow us to apply for Deductible gift recipient status. The next step is to post it in and wait for our hopefully approval and our Certificate of Incorporation. FINGERS CROSSED!!!

The name of the group will be 4P Aussie Kidz, As Wolf Hirschhorn Syndrome is caused by a deletion of the short arm of chormosome 4 (4P)

I will keep you all updated!