- Modifications to your car or home as the child gets older
- Therapy equipment
- Peadiatric or specialist services
- Aids & Equipment (If the costs are not fully covered by the health care system. Which most times it is not and you are left with a large gap)
- Private therapy, if you they wait is too long for government funded therapy
Friday, January 7, 2011
Life... without work, without wihout 2 incomes & raising a disabled child
When I fell pregnant, I dont think we ever planned for me to go back to full time work, unless it was absolutely necessary. However we did plan that at some stage, possibly after 1 years maternity leave for me to do part time work, either at my previous employment, or doing hairdressing 3 days a week.
Going from 2 full time wages to 1 is hard, but it can be done, and is done by many around the world eveyr day...
But when you have a child that is born with a disability, that totally changes the scenario. Suddenly your plan for you to go back to work after 1 year is changed to going back in 3 years, 5 years, possibly never depending on how much care is requried for your child.
Most experts agree the welfare system is underfunded and tortuously complex. There are an estimated 165,300 children with severe or profound disabilities in Australia, yet their families typically receive just $105 in benefits a fortnight, plus a lump sum of $1000 a year.
Families with reduced income and the extra expenses of having a disabled child often find it hard to make ends meet.
Im not ungrateful for the $105 a fortnight I receive from the government, but I do feel that it is a bit of a joke that you receive such a small amount considering some of the things that parents of disabled children have to pay for, such as the below and alot of this is done on one wage
I would love to hear others thoughts on this...
Posted by Melissa Young at 1:52 PM