From our appointment this week we realised it is long process involving information sessions, hearing tests, hearing tests and possibly more hearing tests. MRI's & catscans, communication assessments etc.
So.... After sitting through an information session, providing a history of Ellie, and meeting a surgeon, we have been told that Yes a cochlear implant may possibly benefit Ellie. The first step is to start doing some hearing tests to get some more results to base this on... However as Ellies right grommit is not in any more, they are wanting to put this back in as she has alot of fluid behind her ear drum. This will prevent us from getting accurate hearing tests results.
Ellie is booked in for some eye surgery at The Royal Childrens hospital on the 3 June, so we asked the surgeon if we could organise for the grommit surgery to be done on the same day to eliminate an anesthetic.
You would think this would be easy... but in reality it isnt. Ellies eye surgery is being done by a surgeon who doesnt normally operate at The RCH, however has got permision to operate on a Dr's list there.
The next issue is that the surgeon from the cochlear clinic also cannot operate at The RCH unless on another Dr's list. However Dr's at The RCH can only allocate slots to a certain amount of surgeons...Confused yet?!?!?!
Thank goodness one of Ellies wonderful doctors, receptionists is trying to co-ordinate all of this for me... Fingers crossed!!
To add another spannner in the works, we also asked if the Catscan and MRI could also be done on the same day.... again to elminate another anesthetic... To be honest.. I think this last request may prove to difficult, but again, fingers crossed.
Hope they manage to coordinate it all on the same day for Ellie. Would be good if she didnt have to have too many GA's and even better only one for all.
ReplyDeleteHi Ellie
ReplyDeleteMy name is Jenna and I came across your site., You a precious, special, amazing gift and earthly angel. U are a Courageous, Strong and Determined Fighter. U are a Brave Warrior, Smilen Champ, and an Inspirational Hero. U have touched so many people's lives, and u have touched mine. I was born with a rare life threatening disease. I love it when others go to my site and sign my guestbook.
www.miraclechamp.webs.com
Hi Melissa was really touched about ur story, maybe because we are in the same situation. I have a 6 year old son who was born with no eye ball (right eye)....
ReplyDeletei just dont know wat to do, being in PHILS with no money cant help my situation...his left eye has no vision too...so hard wat my son's future will be...
Hi Anonymous - Does your son have a glass eye in his right eye? Do you have support in Phili? Or is their government financial assisstance? Happy for you to email me, melissa.young80@yahoo.com.au
ReplyDeleteChat soon, Mel