Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Hi I would like to get some information about anophthalmia cause my doughter is also born with the same disease . I am living in Zurich I will be very thankful to guys if u contact me my no are 0764283593 . 0445366892 . 0765030515. Or please send me your contact so I can call thanx a lot from Korai Khalid
Very cute photos. Especially love the one on your blog header and also the one of you and Ellie together.
ReplyDeleteYes - I loved your blog header the other day too. And I love this one. I love that all your photos say "HAPPINESS!!!!"
ReplyDeleteLove Love Love Ellie! Too cute!
ReplyDeleteLove all the pics Mel - Ellie is certainly growing up and is soooo cute!
ReplyDeleteHi I would like to get some information about anophthalmia cause my doughter is also born with the same disease . I am living in Zurich I will be very thankful to guys if u contact me my no are 0764283593 . 0445366892 . 0765030515. Or please send me your contact so I can call thanx a lot from Korai Khalid
ReplyDelete