Monday, May 24, 2010
Today we caught up with Ellies neuorologist. He was very happy with how Ellie is going, as are Luke and I
She is alert, active and responsive & She has been TOTALLY seizure free since our last appointment (about 8 weeks ago) No absent seizures, no blank moments... NOTHING!!
Currently Ellie is on 2 medications to control her seizures. Ideally I would rather Ellie on less medicine than more. But with saying that, IF she had to be on multiple meds to obtain seizure control, then I would be happy with that.
So our plan is to SLOWLY try and reduce her Trileptil dose and increase her dose of Kepra, with the aim to end up just on kepra. I feel comfortable with this, because I know if there is any breakthrough seizuers we have back up meds to give..... & we can always go back to being on 2 meds... if that is what is required.
We have pushed our next neuro app out till 3 months away.... This is a good thing. This shows how well Ellie is travelling, considering at one stage we were going every 2 weeks...
Lets hope this good run continues!!
Posted by Melissa Young at 12:08 PM