Being happy doesnt mean that everything is perfect.

It means that you have decided to look beyond the imperfections...

Monday, May 24, 2010

Neurology Update

Today we caught up with Ellies neuorologist. He was very happy with how Ellie is going, as are Luke and I

She is alert, active and responsive & She has been TOTALLY seizure free since our last appointment (about 8 weeks ago) No absent seizures, no blank moments... NOTHING!!

Currently Ellie is on 2 medications to control her seizures. Ideally I would rather Ellie on less medicine than more. But with saying that, IF she had to be on multiple meds to obtain seizure control, then I would be happy with that.

So our plan is to SLOWLY try and reduce her Trileptil dose and increase her dose of Kepra, with the aim to end up just on kepra. I feel comfortable with this, because I know if there is any breakthrough seizuers we have back up meds to give..... & we can always go back to being on 2 meds... if that is what is required.

We have pushed our next neuro app out till 3 months away.... This is a good thing. This shows how well Ellie is travelling, considering at one stage we were going every 2 weeks...

Lets hope this good run continues!!


  1. Hope it all goes smoothly with the weaning.

  2. Fantastic to hear that Ellie is seizure free!! I am soo happy for you guys!!!
    We are down at the RCH on 8th and 9th of June. So would love to catch up! I will message you though. xoxox

  3. That is great news. Good luck with trying to switch the meds.

    P.S. I love Ellie's hair! My Gracie had hair like that when she was little. It would stick straight up and then curl back. Sooo cute!