Ellie has a rare genetic syndrome called Wolf-Hirschhorn syndrome. This is the result of a genetic error on chromosome 4. It is estimated to occur in 1 in 50,000 births. Ellie also has right eye anophthalmia, which means she was born without her right eye. Ellies life has its ups and downs, but she continually amazes us and makes us smile. This is her story
Being happy doesnt mean that everything is perfect.
It means that you have decided to look beyond the imperfections...
Awww! Melissa, she looks so good!!! I love the hair and I love the contemplating life picture. I wish you guys lived closer. If I ever come to Australia to get a Bubba mat I'm dropping in! Haha. I would love to meet you!!! You're doing such a good job with Ellie. She's a beauty:)
Jessie, her hair is out of CONTROL, it just goes up... but you know what it suits her, we flatened it once with water, and it didnt suit her.... Cant you get the Bubba mats in the US??? I wished all you WHS mums from the US lived closer too.. it would be wonderful to catch up over a coffee!!!
Ellie is looking so good! I can't believe the progress she is making so quickly. Love her to pieces. Can't wait to hear about how everything went on Saturday. Good luck with the running!
Beautiful, Melissa-- simply beautiful! Ellie is doing so well, and I, too, love the contemplating life photo, as well as the one with her teddy bear-- I'm a sucker for a teddy bear hug. Thanks for sharing her with us. xo
Aww!!! I know I havent been on much this week. Life is so crazy. But, I have been keeping up with Ellie and I LOVE her. She is so adorable and I love those cammo pants. She is getting so strong!!! YEA!
Awww! Melissa, she looks so good!!! I love the hair and I love the contemplating life picture. I wish you guys lived closer. If I ever come to Australia to get a Bubba mat I'm dropping in! Haha. I would love to meet you!!! You're doing such a good job with Ellie. She's a beauty:)
ReplyDeleteI love the contemplating life photo too!
ReplyDeleteShe is getting alot stronger!
Ha ha Thanks Ladies...
ReplyDeleteJessie, her hair is out of CONTROL, it just goes up... but you know what it suits her, we flatened it once with water, and it didnt suit her.... Cant you get the Bubba mats in the US??? I wished all you WHS mums from the US lived closer too.. it would be wonderful to catch up over a coffee!!!
she is really a beautiful angel... love all the moments captured! go Ellie go...!
ReplyDeleteEllie is looking so good! I can't believe the progress she is making so quickly. Love her to pieces. Can't wait to hear about how everything went on Saturday. Good luck with the running!
ReplyDeleteOh she is so adorable! Great pictures!
ReplyDeleteVery cute pictures. She is getting so big and strong. :)
ReplyDeleteEvery time I look at your blog I am blown away by how gorgeous she is. What amazing pictures to look at!
ReplyDeleteThe time out one....again it's her Father all over!!!!
ReplyDeleteBeautiful, Melissa-- simply beautiful! Ellie is doing so well, and I, too, love the contemplating life photo, as well as the one with her teddy bear-- I'm a sucker for a teddy bear hug. Thanks for sharing her with us. xo
ReplyDeleteGorgeous photos! She is getting so strong! xox
ReplyDeleteBeautiful pictures. She is gorgeous!
ReplyDeleteAww!!! I know I havent been on much this week. Life is so crazy. But, I have been keeping up with Ellie and I LOVE her. She is so adorable and I love those cammo pants. She is getting so strong!!! YEA!
ReplyDelete