- Lateral body splint (Second Skin) $2,070
- Communication book $280
- Alteration to Ellies pram, or possibly buying a new non-commercial pram that will suit her needs better $?????
Sunday, July 3, 2011
Should we have to make our daughters disability and our situation sound worse than it is?
Over this weekend I had to complete a ECIS (flexible support package) application form for Ellie.
It is a form that we need to complete to apply for funding to cover the costs of the following equipement that Ellie requires:
To apply for funding for these items through the ECIS (flexible support package) you have to fill out an application form.
Let me tell you, filling out such forms when you have a child with a disability is an absolute HEADACHE.
The advice that we were given, to ensure we receive the maximum allocated amount was to 'give the worst case scenario', basically make your situation and your childs diability sound terrible.
Is the situation of just having child with a disability, not already bad enough?
Is the fact that we were forced into being a 1 wage family, due to me staying home to be Ellies carer and do all that is possible for Ellie, not bad enough?
Is the fact that financially we struggle, due to being on 1 wage, not bad enough?
Is the fact that, having a child with a disablity is tiring, exhausting, and puts pressure on your marriage, not bad enough?
Is the fact that you worry about the future of your child? and how you will have to money to cover all future costly expenses, not bad enough?
I dont get this... Im not saying I have the worst situation, yes there are people worse off then us....
But at the end of the day, having any child with a disability, regardless of what type, is bad enough, its hard.... emotionally, financially, physically and mentally.
Our government should not make us beg or embelish our childs disability, just to get our children entitiled to what they deserve.
Posted by Melissa Young at 2:23 PM