EEG & Weight update

Looking at this photo, Im sure Ellie is thinking "Mum are you sure about this thing"

Today Ellie had her EEG, after I got over the my amusement of how she looked with the hat (Cruel I know, but how could I not laugh) the EEG went really well. Ellie started off watching Hi Five and sitting in my lap, after about 10 minutes she started to crack it, so gave her a cuddle and she fell asleep in about 2 minutes. This made the rest of the EEG rather easy, as they need to be rleaxed whilst they are doing the reading.

Ellies neurologist popped in whilst she was having the EEG. Basically what the EEG showed was that there was some sort of seizure related activity going on. This means that Ellie will now need to be on 2 medications to control her seizures, as the one that she is currently on (Trilpetil) she is already having the maximum dose she can of that. We have an appointment with Ellies neuro on Friday morning to discuss this.

This morning Ellie also had her weekly weigh in to make sure she isnt loosing too much weight considering she is still only drinking about 1/2 the milk she used too and not taking more food. Today she weighed in at 6.61kgs, which is down from 6.7kgs last week and 6.8kgs the previous week. Not too concerned about this (yet...) as she weighed 6.8kggs on the paediatricians scales and the last 2 weighs in were done on the maternal child health centre. So as there can be some variance between scales I am not counting the first one... lets see how we go at next weeks weigh in.

Ellies physio also thinks she has found a standing frame suitable enough for Ellies height, se we are waiting to see if this is in use at the moment, if its not then we could borrow it for 1 month to trial it and see what we think.