Friday, March 12, 2010
Today Ellie and I had an appointment with Ellies neurologist. All went well. He used an analogy that helped me understand Ellies EEG; refering to fire, and that Ellie had a smouldering fire with lots of smoke, but it wasnt a big fire yet. But at any time could turn into a big fire (Which means a big seizure) This means that her current medication is not providing the seizure control that we would like.
The EEG also showed that this time Ellies seizures are generalized, which means that they are coming from the whole area of the brain, compared to her EEG last year, which showed that her seizures were partial seizures (focal) which is seizure activity that originates in one part of the brain.
So the plan now is to take Ellie of Trileptil and put her on a new medication, Keppra. This however will take a few weeks as we slowly introduce the new one and decrease the other one.
Was I OK with this plan? Yes
Did I trust our neurologist? Absolutely
Was I nervous about this plan? Yes
The reason being I LOVED how trileptil worked with Ellie, she had personality, she laughed, she smiled, she was developing.
Thats not to say that this medicine wont work with her like trileptil did, but I dont want to see her go back how she was. The good thing is Luke and I know what to look out for this time.
I am hopeful that this is the right medication, but at the end of the day, all children are different, all seizures are different, all medications work differently on different children... its a matter of finding whats right for Ellie.
I am going to be in contact with Ellies nero to update him on how she is going and we have an appointment to review her progress in a few weeks.
Posted by Melissa Young at 8:32 PM